Tag: wellness

in which there is always room at the table

This weekend so so so many people tried to get in contact! (Hi, y’all!) I’m very grateful to have heard from all of you, but I wanted to take a quick moment to do a little housekeeping and make sure that I didn’t hurt anyone’s feelings—- Sam and I informally observe a sort of secular Sabbath, so if you tried…

in which there is just gratitude

I have been lucky in the last few months in that having MS has really been pretty uneventful for me. Most days, having MS has just meant taking pills, disability activism, and watching my lifestyle. This morning, having MS meant crying in my kitchen over a UPS package, because a doctor I haven’t seen in over two years bent over backwards…

in which even I am surprised by how much I had to say

  Let’s talk about drugs, therapies, and approaches. I’m overdue! I’ve put up a new page to hold a running list of medications, supplements, etc. I’ll update it as necessary, but folks have asked, so there it is. There are a few disclaimers up there that I really want people to pay attention to and I’m going to mention them…

in which I finally see that this has all been a bit of a disappointment

  I was doing some back- end maintenance this week when I realized that I have been seriously disappointing some folks in a pretty major way: apparently, a LOT of people are coming here wanting to know if you can take gabapentin (Neurontin) with topiramate (Topamax). This isn’t some weird, outlier search, either- many, many different people have searched those…

on faith and change

My new neurologist drinks Diet Mountain Dew. I’ve latched on to this like a sneak peek into his humanity: I like my doctors to be people, and this seems like a throwback to med school study sessions, or possibly secret, epic tabletop gaming sessions— absolutely a possibility, as he’s also only slightly older than I am, and slightly odd, as…

on regaining balance

I’m back from Chicago, and oh, sweethearts, am I tired. I’ll be honest, Chicago may not have been the best idea I ever had. Or maybe it was, I’m not sure. In all honesty: I had a fantastic time. I saw people I needed to see, people who filled my heart up, refreshed me, re- started me from the inside…

in which we talk a little about this new thing

    I passed! I know I already said that, but I feel as though it bears saying again (and again)— I passed, you guys! I passed! I went in for my Gilenya first dose on Wednesday, and it went about the way we’d expected it would; even with my nerves jangling away, my BP was at about 92/63, and…

on Gilenya and passing time through the power of cat sweaters

I go in for my first dose of Gilenya this Wednesday. It’ll be a full day in a clinic, mostly just sitting and being observed. There will be an ECG in the beginning, to double- check my overall cardio health, then the pill, then periodic checks throughout the next six or eight hours (I’m not sure if it’s six or…