Tag: multiple sclerosis

in which we have pills & pigeons

In February I started feeling off in a way I couldn’t quite put my finger on; things weren’t quite right, I knew that, so I did an MS thing and started carrying a little notebook with me, taking notes. (This is a great trick if you’re working on getting anything tricky diagnosed, FYI: find a note-taking system you know you…

in which I’ve been carefully cultivating my Einstein look

Finally, something, anything about my body was being allowed to do whatever it was that it did, alone and unassisted, and I felt reluctant to put an end to that. That silly thought experiment, started in late winter, had internally snowballed into something much more significant while I wasn’t paying attention.

on possibility and perspective

I had one of those weird moments this week in which I was so completely misunderstood, I thought maybe my brain might be misfiring. It happens every so often; there will be break somewhere between my mind and my mouth and I’ll intend to say one thing but something completely different will be what actually comes out. So, for example, the other…

in which there is just gratitude

I have been lucky in the last few months in that having MS has really been pretty uneventful for me. Most days, having MS has just meant taking pills, disability activism, and watching my lifestyle. This morning, having MS meant crying in my kitchen over a UPS package, because a doctor I haven’t seen in over two years bent over backwards…

in which even I am surprised by how much I had to say

  Let’s talk about drugs, therapies, and approaches. I’m overdue! I’ve put up a new page to hold a running list of medications, supplements, etc. I’ll update it as necessary, but folks have asked, so there it is. There are a few disclaimers up there that I really want people to pay attention to and I’m going to mention them…

in which you get my weekend thoughts only somewhat edited, you lucky dogs

Random, scattered thoughts on dogs, people, movement, and bodies: A couple years back, I started taking this new medication, a night- time “muscle relaxer” called Requip. This isn’t actually a muscle relaxer: that’s just what it does for me. Requip is a non-ergoline dopamine agonist frequently used for Parkinson’s, RLS, and SSRI rebound syndrome. If you’re a neuro/ medical nerd,…

in which I finally see that this has all been a bit of a disappointment

  I was doing some back- end maintenance this week when I realized that I have been seriously disappointing some folks in a pretty major way: apparently, a LOT of people are coming here wanting to know if you can take gabapentin (Neurontin) with topiramate (Topamax). This isn’t some weird, outlier search, either- many, many different people have searched those…

in which I am hoping my feet don’t fail me now

It’s been a big month. I’ve been in and out of my house more than I can remember. Between my trips and his job, Sam and I are in a haze of gratitude for the time we do get to spend together. Kiddo turned 21 this month, which seems both absolutely natural and utterly impossible. Where did my sweet little mop-…

in which I’m still on about this yarn thing, and also drugs

Hey there, Word Lily— drop me an email when you get a second!  You’ve got yarn coming your way; the Random Number Generator chose you this week! Send me your mailing address and a good Paypal address for shipping costs and we will be in business. I’ve shipped out the first two waves of Destash, and added some more things to the…

in which we catch up: Homespun, head scans, and secrets revealed

If there’s anything nicer than a Maryland spring, I’m having a hard time thinking of it right now. Of course, I’m awfully distracted by Maryland & spring at the moment, so. It’s been a good few weeks. I’ve been getting the garden ready, planting seedlings, opening windows, spring cleaning. There’s an overall feeling of goodness and forward momentum, and I’m…