Tag: ms

in which we talk a little about this new thing

    I passed! I know I already said that, but I feel as though it bears saying again (and again)— I passed, you guys! I passed! I went in for my Gilenya first dose on Wednesday, and it went about the way we’d expected it would; even with my nerves jangling away, my BP was at about 92/63, and…

on Gilenya and passing time through the power of cat sweaters

I go in for my first dose of Gilenya this Wednesday. It’ll be a full day in a clinic, mostly just sitting and being observed. There will be an ECG in the beginning, to double- check my overall cardio health, then the pill, then periodic checks throughout the next six or eight hours (I’m not sure if it’s six or…

on Gilenya and giving it my Girl Scout best

So this week I’m doing this mental thing where I’m sitting on the edge of my invisible seat, you guys. Let me back up. I’m working with the folks from Novartis, the suppliers for the pill I’m hoping to transition over to, in order to try and set up my initial dose. The pill is called Gilenya, and it is…

in which I tell you about the truck

I saw my neurologist this week, the charming Dr. D, for a follow- up after my most recent MS flare. In truth, I go to him most often looking for confirmation of things I already know. I ask him things looking for a head- nod, and I usually get it. When I asked him if I could expect to regain…

in which I am done being a judgeypants

I made a daring choice this morning, folks. I wore yoga pants to the studio. SCANDAL, I know. They were a size too large, so they were a bit too loose, but they were yoga pants, sure enough. I almost changed my mind at the last moment, but stuck to my guns and did it anyway. My legs were bothering…

on what I will allow

I’ve been avoiding writing this entry for long enough, I think. So this was the relapse that I don’t come roaring back from, folks. It was inevitable. I’ve been doing my checks, carefully testing my limits, investigating how far I can go, looking for all the indications of disorder, and well, hey: I still love my Solumedrol infusions for pulling…