Tag: ms

in which we have pills & pigeons

In February I started feeling off in a way I couldn’t quite put my finger on; things weren’t quite right, I knew that, so I did an MS thing and started carrying a little notebook with me, taking notes. (This is a great trick if you’re working on getting anything tricky diagnosed, FYI: find a note-taking system you know you…

in which I’ve been carefully cultivating my Einstein look

Finally, something, anything about my body was being allowed to do whatever it was that it did, alone and unassisted, and I felt reluctant to put an end to that. That silly thought experiment, started in late winter, had internally snowballed into something much more significant while I wasn’t paying attention.

on possibility and perspective

I had one of those weird moments this week in which I was so completely misunderstood, I thought maybe my brain might be misfiring. It happens every so often; there will be break somewhere between my mind and my mouth and I’ll intend to say one thing but something completely different will be what actually comes out. So, for example, the other…

in which even I am surprised by how much I had to say

  Let’s talk about drugs, therapies, and approaches. I’m overdue! I’ve put up a new page to hold a running list of medications, supplements, etc. I’ll update it as necessary, but folks have asked, so there it is. There are a few disclaimers up there that I really want people to pay attention to and I’m going to mention them…

in which I finally see that this has all been a bit of a disappointment

  I was doing some back- end maintenance this week when I realized that I have been seriously disappointing some folks in a pretty major way: apparently, a LOT of people are coming here wanting to know if you can take gabapentin (Neurontin) with topiramate (Topamax). This isn’t some weird, outlier search, either- many, many different people have searched those…

in which I’m still on about this yarn thing, and also drugs

Hey there, Word Lily— drop me an email when you get a second!  You’ve got yarn coming your way; the Random Number Generator chose you this week! Send me your mailing address and a good Paypal address for shipping costs and we will be in business. I’ve shipped out the first two waves of Destash, and added some more things to the…

in which we catch up: Homespun, head scans, and secrets revealed

If there’s anything nicer than a Maryland spring, I’m having a hard time thinking of it right now. Of course, I’m awfully distracted by Maryland & spring at the moment, so. It’s been a good few weeks. I’ve been getting the garden ready, planting seedlings, opening windows, spring cleaning. There’s an overall feeling of goodness and forward momentum, and I’m…

on snow days, disability ethics, and a secret

We finally got that Big Snow that our strangely gentle summer had promised us. Seven and a half inches, folks- more in north city. Anyone who’s tried navigating a Baltimore side- street after a major storm knows what today looks like; we’re snowed in, drinking cocoa and watching movies all day. For all the weather- related complaining I do about…

in which there is an announcement, and everything is terrible

So if you haven’t seen it yet, I made a pretty enormous announcement over on the shop blog. Some of you don’t even know there is a shop blog, so hey, it’s cool if you didn’t know. Bodies suck, folks.  Right. Right: I’m still kind of stuck on that last sentence: bodies suck. Bodies suck, bodies suck, bodies suck suck…

on faith and change

My new neurologist drinks Diet Mountain Dew. I’ve latched on to this like a sneak peek into his humanity: I like my doctors to be people, and this seems like a throwback to med school study sessions, or possibly secret, epic tabletop gaming sessions— absolutely a possibility, as he’s also only slightly older than I am, and slightly odd, as…