Tag: medication

in which there is just gratitude

I have been lucky in the last few months in that having MS has really been pretty uneventful for me. Most days, having MS has just meant taking pills, disability activism, and watching my lifestyle. This morning, having MS meant crying in my kitchen over a UPS package, because a doctor I haven’t seen in over two years bent over backwards…

in which we talk a little about this new thing

    I passed! I know I already said that, but I feel as though it bears saying again (and again)— I passed, you guys! I passed! I went in for my Gilenya first dose on Wednesday, and it went about the way we’d expected it would; even with my nerves jangling away, my BP was at about 92/63, and…

on Gilenya and passing time through the power of cat sweaters

I go in for my first dose of Gilenya this Wednesday. It’ll be a full day in a clinic, mostly just sitting and being observed. There will be an ECG in the beginning, to double- check my overall cardio health, then the pill, then periodic checks throughout the next six or eight hours (I’m not sure if it’s six or…

on Gilenya and giving it my Girl Scout best

So this week I’m doing this mental thing where I’m sitting on the edge of my invisible seat, you guys. Let me back up. I’m working with the folks from Novartis, the suppliers for the pill I’m hoping to transition over to, in order to try and set up my initial dose. The pill is called Gilenya, and it is…