Tag: health

Aaaaagh, I'm not good at attachment either some days, but seriously, I like space more than I like stuff.

in which there are infinite possibilities

So that thing I said about posting more destash early last week: what I meant to say was middle of this week, really. I’ve had this pile set aside all week, I just couldn’t get around to snapping pictures; I’d have time, but it would only be in the evening, or I’d have afternoon time, but I’m a tool and…

on snow days, disability ethics, and a secret

We finally got that Big Snow that our strangely gentle summer had promised us. Seven and a half inches, folks- more in north city. Anyone who’s tried navigating a Baltimore side- street after a major storm knows what today looks like; we’re snowed in, drinking cocoa and watching movies all day. For all the weather- related complaining I do about…

on faith and change

My new neurologist drinks Diet Mountain Dew. I’ve latched on to this like a sneak peek into his humanity: I like my doctors to be people, and this seems like a throwback to med school study sessions, or possibly secret, epic tabletop gaming sessions— absolutely a possibility, as he’s also only slightly older than I am, and slightly odd, as…

on living with a hurricane

I’ve been working on this thing lately, a push to regain my body. It’s exhausting. Regaining your health really takes it out of you, as it turns out. Funny, right? Maybe I just needed to hit a really low point first, though, in order to gain the momentum. It gets jumbled. Either way, here I am, scuttling from one appointment…

on regaining balance

I’m back from Chicago, and oh, sweethearts, am I tired. I’ll be honest, Chicago may not have been the best idea I ever had. Or maybe it was, I’m not sure. In all honesty: I had a fantastic time. I saw people I needed to see, people who filled my heart up, refreshed me, re- started me from the inside…

in which we talk a little about this new thing

    I passed! I know I already said that, but I feel as though it bears saying again (and again)— I passed, you guys! I passed! I went in for my Gilenya first dose on Wednesday, and it went about the way we’d expected it would; even with my nerves jangling away, my BP was at about 92/63, and…

on Gilenya and passing time through the power of cat sweaters

I go in for my first dose of Gilenya this Wednesday. It’ll be a full day in a clinic, mostly just sitting and being observed. There will be an ECG in the beginning, to double- check my overall cardio health, then the pill, then periodic checks throughout the next six or eight hours (I’m not sure if it’s six or…

in which I am working on compassion

My left leg is being an idiot again. It had been behaving for a bit there; not perfect, not ideal, but just okay enough that I was feeling hopeful. Today, though. Today I woke up with it feeling heavy, leaden, achy, dull and less- than- responsive. Stupid leg. Idiot leg. I got out of bed and immediately felt a flash…

in which I tell you about the truck

I saw my neurologist this week, the charming Dr. D, for a follow- up after my most recent MS flare. In truth, I go to him most often looking for confirmation of things I already know. I ask him things looking for a head- nod, and I usually get it. When I asked him if I could expect to regain…