Tag: disability

in which we have pills & pigeons

In February I started feeling off in a way I couldn’t quite put my finger on; things weren’t quite right, I knew that, so I did an MS thing and started carrying a little notebook with me, taking notes. (This is a great trick if you’re working on getting anything tricky diagnosed, FYI: find a note-taking system you know you…

sunyata: surrender, release, and engagement

I had other plans for what I wanted to write this today- well, last week, or at all, really. That’s how things go, sometimes. In the last few months, two members of my knitting/ disabled community have died, and rather suddenly, too, at that. It’s strange, how those two communities cross over, I suppose, but that’s not what I wanted to…

in which we talk about letters and access

A few things for this cold and rainy Tuesday; I’m trying to wrap up my day quickly, so that I can hop in the shower and head out to a meditation that some friends are running, so please pardon any mess. It’s been busy here, and I have a lot that I want to share, but I’m going to try and…

on possibility and perspective

I had one of those weird moments this week in which I was so completely misunderstood, I thought maybe my brain might be misfiring. It happens every so often; there will be break somewhere between my mind and my mouth and I’ll intend to say one thing but something completely different will be what actually comes out. So, for example, the other…

in which there is just gratitude

I have been lucky in the last few months in that having MS has really been pretty uneventful for me. Most days, having MS has just meant taking pills, disability activism, and watching my lifestyle. This morning, having MS meant crying in my kitchen over a UPS package, because a doctor I haven’t seen in over two years bent over backwards…

in which even I am surprised by how much I had to say

  Let’s talk about drugs, therapies, and approaches. I’m overdue! I’ve put up a new page to hold a running list of medications, supplements, etc. I’ll update it as necessary, but folks have asked, so there it is. There are a few disclaimers up there that I really want people to pay attention to and I’m going to mention them…

in which I finally see that this has all been a bit of a disappointment

  I was doing some back- end maintenance this week when I realized that I have been seriously disappointing some folks in a pretty major way: apparently, a LOT of people are coming here wanting to know if you can take gabapentin (Neurontin) with topiramate (Topamax). This isn’t some weird, outlier search, either- many, many different people have searched those…

in which I am hoping my feet don’t fail me now

It’s been a big month. I’ve been in and out of my house more than I can remember. Between my trips and his job, Sam and I are in a haze of gratitude for the time we do get to spend together. Kiddo turned 21 this month, which seems both absolutely natural and utterly impossible. Where did my sweet little mop-…

Aaaaagh, I'm not good at attachment either some days, but seriously, I like space more than I like stuff.

in which there are infinite possibilities

So that thing I said about posting more destash early last week: what I meant to say was middle of this week, really. I’ve had this pile set aside all week, I just couldn’t get around to snapping pictures; I’d have time, but it would only be in the evening, or I’d have afternoon time, but I’m a tool and…

on snow days, disability ethics, and a secret

We finally got that Big Snow that our strangely gentle summer had promised us. Seven and a half inches, folks- more in north city. Anyone who’s tried navigating a Baltimore side- street after a major storm knows what today looks like; we’re snowed in, drinking cocoa and watching movies all day. For all the weather- related complaining I do about…