Hey there, Word Lily— drop me an email when you get a second! You’ve got yarn coming your way; the Random Number Generator chose you this week! Send me your mailing address and a good Paypal address for shipping costs and we will be in business.
I’ve shipped out the first two waves of Destash, and added some more things to the Etsy Destash shop. I’m surprised at how much I’ve managed to get out of the house already, and how little of a dent I’ve managed to make in the overall mass. The real issue is how non- intuitive the Etsy Seller’s format is; there’s no ability to create a template, which really slows things down. Not the end of the world, but boof, these updates. Luckily, I have a healthy Netflix queue to help me along (I’m looking at you, Sense8), but I’d be lost without a little enhancement.
Stash talk aside, I had a minor bit of housekeeping I wanted to do: some folks had asked me for a Gilenya update now that it’s been almost two years since I started the drug. I’m still a little surprised that it’s actually been that long— time flies, right?— but sure enough it was July of ’13. So for my MS/ Gilenya folks: I’d said I wasn’t going to pass judgement until 6 months had passed, and here it is, two years later. What do I think?
It’s a lot better (for me) than Copaxone was. Zero relapses in two years vs an annual spring relapse on C. Some symptom progression and the addition of side meds, but I’ve adjusted with lifestyle changes (some of which were far overdue) and PT. I did notice a low/ dull headache, fatigue, and some nausea in the beginning but moved my dose to bedtime and after that, zero side effects after the first two weeks. My heart rate did get lower but I’m naturally bradycardiac (healthily) so no big. No dizzy spells, and blood pressure is cool.
Yeah, I heard about the PML cases and I’m not worried about it; lots of folks have been on different treatments before taking Gilenya, we still don’t know if the Gilenya PML cases took Tsyabri or Techfidera (or if they had been tested for JC). Also, we now know that PML isn’t always the death sentence we’ve been told it was, and while I’m definitely not looking to take any chances, I’m also not leaving the disease- modifying therapy that’s working best for my body at the moment over a .001% not- always- lethal chance.
There’s the obvious plus of it being a pill, as well; after years of self- administering shots I’m not injection- averse, but transporting meds is so compact & easy now, and hugging people is a lot less painful, too.
All the standard disclaimers: I am not a doctor or any other medical professional, your body is completely different from my body and your disease is not my disease, either, etc, etc. Still, it’s working out for me. I’m into it. I have a weird- looking, birth control looking pack of pills that don’t make me feel any kind of way and supposedly keep my disease in some kind of check. They don’t make me feel like I can’t breathe and like my chest might be caving in every six weeks, like Copaxone did. I don’t have relapses, or at least, I haven’t in a while, and that’s pretty rad. My disease is definitely progressing, but it’s very, very slow, and I’m as okay with that as I can be.
Last piece of housekeeping: the next giveaway! This time around I have a very slightly spotted skein of Skinny Bugga in Blue- Ringed Octopus. It’s marked Irregular, and I’m giving it away because the spot is so, so obvious- it’s red, against that pale Tiffany blue, so you’d almost positively have to cut it out. That said: it’s just the one spot as far as I can see, so hey, give this little guy a home, would ya?
Today it’s easy: I need something free to watch while I’m packing orders or listing yarn on Etsy. If it’s on Amazon Prime, Hulu, Netflix or any of the standard free channels on Roku and it’s awesome, recommend it in the comments! I’ll Random Number Generator it on Tuesday for a winner. Good luck, everybody!