the ninth list of things that make me happy




Broken out on Flickr, of course.

My doctors and I have only recently really gotten a handle on how my disease is affected by heat, and this weekend was unbelievably hot. The current direction from my neuro is to avoid being in any temperature above 70 degrees for anything over thirty minutes. I'm pretty sure we both looked out the window at the already ridiculous Baltimore weather immediately after he said it; I know I said something like, "How am I supposed to manage that, exactly?" and his response involved shaking his head and suggesting I consider a handicapped placard for my car. 



I had an outdoor wedding to photograph Saturday at 11, but it was already in the 80s by 10 am. I shot the wedding anyways, with the help of a little sangria from Carma's Cafe and with Sam as my second, which helped a ton. (Side note: I'd like Carma's to cater my life, please.) I got the hell out of dodge immediately after the ceremony, and I think I did all right; I was feeling pretty crap at the end there, but air conditioning restored me pretty quickly and was careful with myself for the rest of the weekend.

The wedding really solidified what my doctors had been telling me: heat and me are a terrible mix. I had held secret hopes of being able to peek into Maryland Sheep and Wool for an hour or two, but after the wedding there was just no way; I missed it entirely, as I'd expected to.

The idea of missing MDS&W made me very sad: it seemed like a particularly egregious symbol of the recent, unwelcome changes in my life. We had a meetup on Saturday that I missed (that's work stuff! I've never been the type to miss work stuff!), there was funnel cake and lambs and gyros, and there was the tradition of the thing. I scheduled my deployment to fit around MDS&W, for crying out loud.

Honestly, though, this weekend was pretty fantastic. Sam guessed I'd be feeling pretty badly- I hate learning my restrictions, they make me feel so weak- so he went out of his way to take me around to all of my favorite things this weekend. I don't know if there are words for how wonderful it is to have a partner who can step in and seamlessly help me focus on feeling normal when everything seems off, but I'm damned grateful for him.

We went to Cosmic Comics for Free Comic Book Day, which is going to be our new way of celebrating the arrival of spring, I think. Sam and I both won prizes in the raffle, and all my back issues of House Of Mystery came in. We ate at Kelsey's and reviewed wedding photos together, picking through our favorite shots of Melissa and Rob. There was a pint or two of Harp involved, and in the evening we planted things. I have a black thumb, but I sure love planting things.


Hang flowers


And Sam gave me a banjo, people. A banjo! If that isn't love, I don't know what is.


Banjo bridge

A banjo! I think her name is Emily, although we're still working it out. My poor husband and daughter will have to listen to me plinking away at this for the next… well, ever… until I get it figured out. I played guitar in high school, and bass later on, so hopefully I'll be a quick study. For Sam's sweet sake, at least.   

So- long story short (too late, as ever)- my weekend was amazing and unexpected, or unexpectedly amazing, despite missing sheep. How was yours?

  One thought on “the ninth list of things that make me happy

  1. mel
    May 3, 2010 at 9:29 am

    Oh my god, a banjo. I think it’s time to send more music!

  2. May 3, 2010 at 6:31 pm

    Even those of us who are reletively healthy had trouble with the heat at MDS&W! Glad you had diversions. Best to you!

  3. Carol
    May 3, 2010 at 6:34 pm

    It was around MDS&W three years ago that my symptoms surfaced. I kinda consider MDS&W to be my MS anniversary date.

  4. em
    May 4, 2010 at 8:49 am

    firstly, i love the potential name of your banjo!!! how awesome that you got it 🙂
    the heat is definitely something to be aware of with ms – as i’ve seen with my mom. however she’s not really such a good listener, and has spent the past 3 days (almost in the 90s) working out in the garden. today i think she’ll sleep most of the day to make up for it.

  5. May 5, 2010 at 12:43 pm

    im not heard banjo only now i heard when i read it, but now i learn a lot.

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